Real experiences and reflections from those who contribute to our mission.

SWEATHA
Madras School of Social Work

Have you ever been satisfied and felt happy in what you do? A big “YES” from my side, working in Golden Butterflies Children’s Palliative Care Foundation made me say this “yes”. From this organization, I got an opportunity to help a caregiver and a child patient who couldn’t travel often from Tirupati to Chennai. On 18/09/21(Saturday), a caregiver from ICH, Egmore asked me for help. She called me and told me that her daughter has been discharged from the hospital, she needs to stay nearby the hospital. They couldn’t afford the stay as well as the food because they are underprivileged. I contacted Ms. Rama, project head of golden butterflies, asked her for help.
She Contacted a person in can stop organization and they told that there is an home available next to ICH, Egmore. Ms. Rama informed me and then I told the caregiver about the place, they were fine with the place, until then they took a room and stayed there for a night. On 19/09/21 (Sunday) I went to the caregiver’s location, picked an auto and took them to the home care centre. I explained all the rules and regulations followed by the home care centre, because they don’t understand and speak Tamil. I left them there and made them feel free and comfortable.
They were so happy and the caregiver started crying and she told me that I’ve been her saviour. That one word made me feel proud of myself and was satisfied with what I’m doing. Thanks to Golden Butterflies Children’s Palliative Care Foundation for being there with me and guiding me, also thanks a lot for great Learning and wonderful experience.

SWEATHA
Madras School of Social Work

Have you ever been satisfied and felt happy in what you do? A big “YES” from my side, working in Golden Butterflies Children’s Palliative Care Foundation made me say this “yes”. From this organization, I got an opportunity to help a caregiver and a child patient who couldn’t travel often from Tirupati to Chennai. On 18/09/21(Saturday), a caregiver from ICH, Egmore asked me for help. She called me and told me that her daughter has been discharged from the hospital, she needs to stay nearby the hospital. They couldn’t afford the stay as well as the food because they are underprivileged. I contacted Ms. Rama, project head of golden butterflies, asked her for help.
She Contacted a person in can stop organization and they told that there is an home available next to ICH, Egmore. Ms. Rama informed me and then I told the caregiver about the place, they were fine with the place, until then they took a room and stayed there for a night. On 19/09/21 (Sunday) I went to the caregiver’s location, picked an auto and took them to the home care centre. I explained all the rules and regulations followed by the home care centre, because they don’t understand and speak Tamil. I left them there and made them feel free and comfortable.
They were so happy and the caregiver started crying and she told me that I’ve been her saviour. That one word made me feel proud of myself and was satisfied with what I’m doing. Thanks to Golden Butterflies Children’s Palliative Care Foundation for being there with me and guiding me, also thanks a lot for great Learning and wonderful experience.

VISHNU PRIYA
Madras School of Social Work

Interning with Golden Butterflies is one of the best things that has ever happened to me! This august opportunity made its way to me in the mid of August & I must say, this stint of 1½ months has been the bestest moments of the entire 2021!
The mile here is very friendly, yet upholding professionalism. I’ve always thought fun & professionalism would never go together- which after coming here was proven wrong!!
Not just our mentors who were guiding us, but also the other trustees of GB were very friendly towards us & encouraged each and every steps that we’d taken.
Ohh and to talk about my experience at ICH…Trust me you’ll love it! Initially, I had preconceived notions about Cancer Children’s. My very first visit shattered all of it!! Yess!! That is when I understood that kids will be kid’s matter where they are, what their condition is.
The charisma they reflected really allured me and made me feel more lively whenever I worked with them. It’s their energy that kept me going, and boosted me to do even more for their betterment. It is not the disease which was infectious, but their energy was damn infectious!
The concept of “Informal Education” was totally new to me when I came here. But in the due course of time, I think I’ve mastered this skill!
Follow these steps to know the secret of acquiring this skill. Which is- For a moment, forget who you are, what you’re doing…Refrain yourself from all the negativity & oscillating thoughts…just think of your childhood…the things which made you happy…the moments which were very close to your heart…Re-live your childhood phase…Feel the kid in you…
Now you think of the things that will intrigue you & motivate you to learn. And yeah!! This is it. When you feel the kid in you, you’ll reside in the mindset of a child & come up with lovely ideas to work with them. Ultimately, you’ll find an irreplaceable place in the hearts of these lil lives!
The simple mantra to be remembered whenever you are working with the Children’s is “Feel the kid in you & do whatever you love!” Stop thinking this as a task which has to be accomplished! Instead, make yourself comfortable & become a friend to the Children’s and see all the wonders that will happen !!
I take this moment to thank Golden Butterflies for giving me such a wonderful opportunity to work with them. I’ve not only gained professional experience, but also have definitely learnt and acquired many values for life!
GB has become more like a family to me now It was quite hard to leave the office on the final day, holding up the tears- which were dazzling like a rain drop at the corner of my eye.But that is when GB, “again” made me realise that no matter how far we go, family will be always there for us, awaiting our arrival!! I knew that they will be always there for me.
I whole heartedly thank Ms. Clara, Ms. Rama & Ms. Stella for moulding me into a better version of myself! “It feels good when someone says take care; but it feels great when someone says I’m here to take care of you! But you know what??! Knowing that GB will be there for me to take for me made me feel superb special!!”

SHARON GIFTA S
Madras School of Social Work

Palliative!!!
Have you heard this word?? Okay you might… but this term was very new to me! Especially Paediatric Palliative!? What is even that?
After I came to Golden Butterflies I came to know the meaning of Palliative and Paediatric Palliative care. Golden butterflies didn’t stop with that! They taught me how to handle Children’s and they made us to realize how blessed we are!. And also we went in a group to do internship in GB, the bond between us also grew along with GB. We could clearly see the difference between us before coming to GB and after we came to GB. I had so much of learning’s and lot of new experiences. I loved working with Children and I am happy that i was able to do something to the Children’s through GB.

SHARON GIFTA S
Madras School of Social Work

Palliative!!!
Have you heard this word?? Okay you might… but this term was very new to me! Especially Paediatric Palliative!? What is even that?
After I came to Golden Butterflies I came to know the meaning of Palliative and Paediatric Palliative care. Golden butterflies didn’t stop with that! They taught me how to handle Children’s and they made us to realize how blessed we are!. And also we went in a group to do internship in GB, the bond between us also grew along with GB. We could clearly see the difference between us before coming to GB and after we came to GB. I had so much of learning’s and lot of new experiences. I loved working with Children and I am happy that i was able to do something to the Children’s through GB.

SUVEDHAN
Madras School of Social Work

Everyone can learn, but not everyone can teach. Here I learnt to teach, I think that’s what Golden Butterflies is. The special and unique thing about GB is they’ll correct your mistakes without hurting you, we can’t find this type of attitude in many places.
You’ll have fun, laugh, game, freedom, exposure with learning and sometimes free food too, at the end you’ll question yourself; what more I want?
As an intern you will surely get your wings while leaving GB, I assure that will be the moment where you pretend to not cry.

MOHAMMED FAZIL
Madras School of Social Work

It’s challenging, both physically and emotionally. Believe it or not, most families describe some positives and negatives that appear through the pain as well. No matter what age someone is at diagnosis, cancer is devastating. But when it comes to treatment and research, childhood cancers and adult cancers are not the same. Unlike adults fighting cancer, kids may not fully understand what’s happening to them while they undergo cancer treatment. They don’t understand why their hair is falling out, or why they can’t go to school with their friends, or why it’s essential that they take medicines that taste bad or make them too sick to play. It’s very awful. I got to learn the importance of human relationships, and I am much obliged for that.

MOHAMMED FAZIL
Madras School of Social Work

It’s challenging, both physically and emotionally. Believe it or not, most families describe some positives and negatives that appear through the pain as well. No matter what age someone is at diagnosis, cancer is devastating. But when it comes to treatment and research, childhood cancers and adult cancers are not the same. Unlike adults fighting cancer, kids may not fully understand what’s happening to them while they undergo cancer treatment. They don’t understand why their hair is falling out, or why they can’t go to school with their friends, or why it’s essential that they take medicines that taste bad or make them too sick to play. It’s very awful. I got to learn the importance of human relationships, and I am much obliged for that.

LANVYA GURUMOORTHY
Madras School of Social Work

I was used to being an introvert my entire life. I don’t have many friends…I don’t chat or talk with anyone often. I don’t participate or volunteer in any programs. I love to be alone and that is my favourite thing to do. But after coming to Golden Butterflies I realized what I have been missing for my whole life. Meeting the team of Golden Butterflies created such a good impact on me. I started to develop my personality in a better way. Working with the Children’s was such a wonderful experience. I couldn’t believe that I was able to put a smile on a child’s face. And my favourite part is that I volunteered to do research for the golden butterflies. This is something where I came up and volunteered for the first time. I made sure that I had to give my best. I got to work with my classmates which gave me the bestest memories to carry forever in my life. Golden Butterflies made me inspired, encouraged, grateful and got the best of me. It will always have a special place in my heart and it was my pleasure to get an incredible experience from Golden butterflies.

GANESH KRISNAN
Madras School of Social Work

A 20-year-old boy who has no idea about what Internship is all about but eager to work. While searching for NGO’s I got GB’s contact through my super senior. First thing I hear about GB is it was a Children’s Palliative care our work will be mainly associated with Cancer Children’s at ICH, Egmore. Without delay, I imagined my crying face while watching Fault in our stars and Igloo film. I was so eager to meet cancer Children’s. Then I started working there with my friends. What an incredible experience it was!!! GB engaged me in various NGO activities which made me to explore myself and a right food for my inner learning thirst. I learned, I smiled, I cried and I lived there for a month. There is a phrase you will find in GB “It feels good to hear someone say take care. But, it feels so much better to hear when someone says I’ll take care of you. GB took care of us all these days, and it is such a pleasure to work there. Golden Butterflies made me inspired, encouraged, grateful and got the best of me. It will always have a special place in my heart and it was my pleasure to get an incredible experience from Golden butterflies.

GANESH KRISNAN
Madras School of Social Work

A 20-year-old boy who has no idea about what Internship is all about but eager to work. While searching for NGO’s I got GB’s contact through my super senior. First thing I hear about GB is it was a Children’s Palliative care our work will be mainly associated with Cancer Children’s at ICH, Egmore. Without delay, I imagined my crying face while watching Fault in our stars and Igloo film. I was so eager to meet cancer Children’s. Then I started working there with my friends. What an incredible experience it was!!! GB engaged me in various NGO activities which made me to explore myself and a right food for my inner learning thirst. I learned, I smiled, I cried and I lived there for a month. There is a phrase you will find in GB “It feels good to hear someone say take care. But, it feels so much better to hear when someone says I’ll take care of you. GB took care of us all these days, and it is such a pleasure to work there. Golden Butterflies made me inspired, encouraged, grateful and got the best of me. It will always have a special place in my heart and it was my pleasure to get an incredible experience from Golden butterflies.

DHARANI DHARAN OJ
Madras School of Social Work

Strong support is an essential part of life, especially when you’re facing a serious and life-altering illness. For those living with cancer, HIV/AIDS, heart disease, kidney disease, lung disease, or dementia, Palliative care offers the necessary support. Palliative care consists of a team of professionals who work to minimize the challenges and discomforts of a serious disease. Unlike hospice care, it can be used at any point in the progression of a disease. Palliative care may include pain management, curative treatments, massage therapy, spiritual and social counselling, and other medical care. Those who receive Palliative care have unique needs and stressors. A personalized team can understand and address these needs. In addition, support from friends and family is key during these stages. The following online resources help to inform and support those who are considering Palliative care or going through it, as well as their loved ones.